Online and Telephone Support Group Resources
This document provides a list of and links to online and telephonic resources that specialize in kidney disease. Many offer education, as well as the opportunity to connect with other end stage renal disease (ESRD) patients, family members, and/or caregivers through discussion forums and subscription-based email lists.
View ResourceAmerican Association of Kidney Patients
The American Association of Kidney Patients is recognized as the leader for patient-centered education – continually developing high quality, professionally written, edited and reviewed educational pieces covering every level of kidney disease.
View ResourceAmerican Kidney Fund
The American Kidney Fund is dedicated to ensuring that every kidney patient has access to health care, and that every person at risk for kidney disease is empowered to prevent it. The site offers patient programs, kidney disease education, and professional education.
View ResourceFlorida Department of Health
The Florida Department of Health works to protect, promote & improve the health of all people in Florida through integrated state, county, & community efforts.
View ResourceNational Kidney Foundation of Florida
The National Kidney Foundation is the leading organization in the U.S. dedicated to the awareness, prevention and treatment of kidney disease for hundreds of thousands of healthcare professionals, millions of patients and their families, and tens of millions of Americans at risk. This site represents the Florida Chapter.
View ResourceNational Kidney Foundation of Northern CA
The National Kidney Foundation is the leading organization in the U.S. dedicated to the awareness, prevention and treatment of kidney disease for hundreds of thousands of healthcare professionals, millions of patients and their families, and tens of millions of Americans at risk. This is webpage represents the Northern California chapter.
View ResourceNational Kidney Foundation of Hawaii
The National Kidney Foundation is the leading organization in the U.S. dedicated to the awareness, prevention and treatment of kidney disease for hundreds of thousands of healthcare professionals, millions of patients and their families, and tens of millions of Americans at risk. This is webpage represents the Hawaii chapter.
View ResourceRenal Support Network
The Renal Support Network is a nonprofit, patient-focused, patient-run organization that provides non-medical services to those affected by chronic kidney disease.
View ResourceHome Dialysis Central Forums
Home Dialysis Central is a one-stop resource for patients and professionals who want to learn more about home dialysis options—what they are, where you can find them, and why you might want to choose one over another. You can get advice from experts or other members of the home dialysis community, or you can share your knowledge with others. This site is an online discussion forum.
View ResourceHome Dialysis Central Discussion Group on Facebook
This is a moderated private Facebook group. You can ask anything without worry. Group members are kind, smart, helpful, and respect each other. They welcome dialyzers, caregivers, and others for support, information, and help coming to grips with dialysis in any of its forms.
View ResourceNephkids Cyber-Support Group
Nephkids is cyber-support group for parents of children with CKD. It offers an interactive email group (listserv) for parents of children with all types of chronic kidney disease.
View ResourceNKF Peers Lending Support 1. 855.653.7337 (1.855.NKF.PEER)
This website from the NKF is for a new patient program that connects people needing support with peers who “have been there.”
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